One of the hardest things for parents to take is to recognize that their child has ASD or ASD. For some reason, the label Autism panics, it is better to say no, my son has autism, has PDD, TSP (semantic-pragmatic disorder) or TEL or any other cluster of acronyms to remove the label autism. But what is really the TGD? because my view is a kind of euphemism for the autistic syndrome itself.
According to the Autism Society of America, the term “Pervasive Developmental Disorder” (Pervasive Developmental Disorder (PDD)) is widely used by professionals to refer children with autistic syndrome and related disorders. However, you should know that there is much disagreement and confusion among professionals concerning the ownership of the classification of “Pervasive Developmental Disorder.” Until more is known much more about what causes autism, there will still be disagreements between all competent authorities in the diagnosis and identification of autism, and as to its classification as appropriate.
Many professionals define autism and PDD based on the diagnostic manual printed by the American Psychiatric Association: The Diagnostic and Statistical Manual of Mental Disorders (Diagnostic and Statistical Manual of Mental Disorders “DSM”) now in its fourth edition ( -IV). According to DSM-IV, the TGD is not a specific diagnosis, but an umbrella term under which defines the following specific diagnoses: Autistic Disorder, Rett Disorder, Childhood Disintegrative Disorder, Asperger’s Disorder and Pervasive Development Not Otherwise Specified (PDD / NOS).
In the case of TSP (semantic-pragmatic disorder) includes a file quite enlightening.
But really and labels aside, the most important must be the stability of the family. Own refusal to believe in the diagnosis, going round and round in search of a “specialist” to tell us what we want to hear, the state of stress and frustration and guilt that this situation creates, does not help, nor the child and of Panic Away course the parents which ultimately must be the hard core.
This situation is compounded by the fact that he has matched negative prior to the parents, not diagnosis. The despair that parents bring to detect that your child does not meet the criteria of “normality” and begin a pilgrimage to nowhere. Given that a large majority of pediatricians do not have, regrettably, the most remote idea about any disorder that affects the psychological and intellectual capacities of a child, and in cases such as hypotonia (for instance), or in physics. That is, the pediatric group has a low skills to deal with these situations. Even in cases where there is a clear phenotype such as Fragile X Syndrome, most pediatricians are a complete ignorant.
From this point, where parents get especially heavy with the pediatrician’s visit leads to the service of Neuropediatrics (which is the easy way out for the brown pediatrician will pass to another), and in this case to pray that we get a well qualified professional. Potential studies, MRI, karyotype analysis, … and a number of tests that are no less traumatic for our children, even in some of them is indispensable sedation of the same risks that entails. And all these tests are done on a whim and that an assessment by an expert group would be more than enough to have avoided our children-and ourselves-the ordeal.
For example, a visit to the ENT we will clear many doubts, a thorough examination can provide much information without the need for sedation based on barbiturates.
In the area of magnetic resonance imaging, would not seek more than the neurologist facts, just look at the publication “Magnetic Resonance Imaging and Head Circumference Study of Brain Size in Autism. Birth Through Age 2 Years. “This study was published in May 2005 by the Neurodevelopmental Disorders Research Center, University of North Carolina. Instead of an ordinary MRI to see that in the particular moment of the resonant head and brain development of our child is within normal range without further track the evolution in order to have comparative data. And by the way can we avoid being prescribed Risperdal and other similar drugs except for doping (only temporarily) to our son, to serve little more.
We are therefore faced with a psychological and not physical, it would be obviously looking for something that’s never going to find.
And there we come back to the thread of this text, which is the parent. Do not forget that in the world of autism are given high levels of breakage of the couple.
We are usually in denial, my son has autism, PDD or have TEL has, or has anything (even worse) this denial is part of the non-acceptance of the problems of our son and hence the delay in proper treatment and educational intervention. A child with ASD need early attention will evolve faster and better than if we wait for our mental chaos clears. It should be mandatory psychological support for parents who are, unfortunately, the forgotten. But culturally it is going to a psychologist because you’re mad, slows the pace. So let there topics! A good professional will help us to take, understand and accept the special situation of our son, we will help to inform us properly about that is really Syndrome Autism and logically that our attitude is positive and not a rejection posture and tension.
Another important issue is to discern the behavior of our son. An event that creates a lot of frustration (mostly mothers) is detachment, that independence which they act indifferent. If you are thirsty seek water for themselves and if they fail, they took us out to the kitchen (if it is the place where the child associates the location of water for drinking, for example) and once in the same initiative a kind of sadistic game of riddles. Let’s see if we succeed with what our child wants, because of course when we identify this action with the water will be relatively easy, until a time when our child does not want water, want a cookie for the hungry and of course, return to to start. No communication, our son does not say anything, except a single word or incomprehensible-not empathize emotionally, you can spend hours sitting on the floor of his room mulling over a pan lid. This and many other common behaviors create our son to the mother a sense of breaking the mother-child bond, not to mention that to go outside our offspring have a bad behavior that makes the mother ashamed of her son, and evidently take her to a very bad feeling to feel ashamed of his own son making her feel more guilty yet.
If we have a minimal understanding of why our son acts this way and also we are unable to break the invisible wall that separates us from them, not only we are condemning ourselves, we are doing with our children. It is the responsibility of parents to know to ask for help to learn to understand our son, because if not, reach the opposite situation, ie we will be the autistic behaviors we unable to break that invisible wall. It’s time to take care and not to worry.
